Ethan is at his happiest when he is at home playing with his siblings or at school with his friends. where his cheeky side really shines through which is wonderful to see. He loves visiting the Little Rascals Play Centre, greeting us with a high five and a smile which melts your heart. He is always reluctant to leave but thanks us by using makaton.
Ethan loves to play outside in the garden with his family which helps to use up his endless energy!
Ethan is non-verbal, has cerebral palsy, short bowel syndrome, hyper portal tension, has had four cardiac arrests and spent the first 18 months of his life in Alder Hey Hospital.
Ethan was born at 30 weeks weighing just 3lb 10oz by crash section with endless life threatening and life limiting conditions. He has to be fed intravenously and all of his meds are administered this way too. Ethan has to deal with a lot. He is confined to his cot for 14 hours whilst on his TPN but he's a very brave boy and has proven to be a little fighter. Thankfully for Ethan and his family, he lives in his own special bubble and that special bubble is the most wonderful and happy place.
We have been fundraising for Ethan to help him and his family share fun times and make special memories. We have purchased a special needs bespoke travel bed which will enable the family to have much needed holidays.
We are also currently fundraising for sensory equipment for his bedroom and specialist garden play equipment which will enable him to experience so much more from the outdoor environment that most children take for granted.
"Ethan has life limiting and life threatening illnesses. It's just about making memories as a family. Thank you is not enough; words cannot describe how amazingly grateful we are to Little Rascals Foundation"
Mel Wheeler - Ethans Mum